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“AND I DON’T EVEN KNOW WHERE MY BABY IS BURIED!” Oh For An NHS Future-Gazer!

Originally posted on CHAPLAIN'S BLOG:
None of this for my friend 49 years ago… Today I heard a tragic tale from someone I count as a friend. They had seen that I had been shortlisted for a Butterfly Award for my work with parents who have lost their babies (see my profile here: http://www.thebutterflyawards.com/index.php/voting/userprofile/revdavidsouthall…

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Interview: Annie Clothier, Volunteer For CLAPA South Wales Branch (Cleft Lip & Palate Awareness Week)

As part of my continuing series of blog posts for Cleft Lip & Palate Awareness Week, I’m absolutely delighted to have had the opportunity to interview Annie Clothier, whose daughter Ayla was born with a cleft palate. Annie is truly inspirational and she volunteers for the Cleft Lip & Palate Association. Tell us a bit…

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Cleft Lip & Palate Diagnosis Delivery: Communication Matters (Cleft Lip & Palate Awareness Week)

When my Frankie was diagnosed with a severe cleft lip and palate, this is what happened: My unborn son Francesco “Frankie” Enrico Ventura was diagnosed with a unilateral cleft lip and palate at the Worcestershire Royal Hospital on Wednesday 25th September 2013 when I was 23 weeks pregnant.  The sonographer who conducted the scan blurted out…

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Support For Empty Armed Mothers

I’ve been doing a lot of work on “Frankie’s Legacy” recently to bring it more in line with what I always wanted it to be – a blog and a place where I can talk honestly and openly about my feelings, a resource site for early pregnancy loss, stillbirth, neonatal death, cleft lip/palate, rare chromosome…

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New Campaign: Communication Matters!

 I will be launching a campaign in the coming months called “Communications Matters” which will promote the importance of excellent communication between healthcare professionals and parents to be, especially when bad news has to be given.  This is an area that is woefully lacking within the NHS, and the following are some actual examples of…

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The Green Eyed Monster – Part 2

Today I awoke to the news that the majority of us in the UK have all been waiting for, that the Duchess of Cambridge had gone into labour.  When Prince George was born I was just over 3 months pregnant with Frankie, and marvelled and how amazing she looked when she left the Lindo Wing…

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Life Is A Journey, Not A Destination…

The first four months of 2015 are over, and May 1st is finally here.  We are going forward to (hopefully) warmer weather and to longer nights.  Summer isn’t too far away and I’m already feeling much better in myself, happier, calmer and more relaxed than I have in a long time.  Wednesday this week was a…

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Poem: An Empty Armed Mother

Am I or aren’t I? Am I a mother or not? I did give birth you see But I have an empty cot I carried my son inside me For 33 weeks I felt him grow I couldn’t wait for him to arrive I loved him very much, this is so All the things we…