Frankie’s Legacy Is Supporting Rare Chromosome Disorder Week

Frankie’s Legacy is supporting the first ever Rare Chromosome Disorder Awareness Week in his memory, as Frankie would have had Chromosome 15 Duplication Syndrome if had lived, which meant he would have been severely mentally and physically disabled.  This is a very rare chromosome disorder with 1 in 300,000 affected by it, and that was…

How Things Change….

I can’t believe how much my life has changed in just a year.  This time last year I was knee deep in plans and preparations for getting married to my wonderful husband Russell.  We decided that we didn’t want a big wedding so we booked the registry office at County Hall and went out for…

Frankie’s Legacy Business Networking & Launch Event

We are inviting the business community in Worcestershire to attend the launch of Frankie’s Legacy to find out about us, what our charitable aims are and to enjoy a business networking session at the same time. Tickets cost £10.00 to include a drink and nibbles, and can be purchased by following this link: http://www.eventbrite.co.uk/e/frankies-legacy-launch-business-networking-event-tickets-10709443233?aff=es2&rank=1&sid=7bd27a879ef311e3982f12313b01554c Download…

Busy Busy Busy!

This week has probably been the busiest one I’ve had since Frankie was born sleeping.  But being busy hasn’t meant that I haven’t thought about him and missed him every single day – I have. Every day is still a struggle and I long to hold him in my arms, kiss him and tell him…

Frankie’s Due Date

Today is Frankie’s due date.  This should have been a time of excitement and hope.  Of me wondering if every little twinge was the start of labour and whether he was finally on his way.  I should still be heavily pregnant, feeling fat and unwieldy waddling along wondering if my legs will support my massive…

Happy New Year :) xxx

Happy new year to everyone who has followed Frankie’s journey on this blog, who have sent us messages of support and who have said to us we have been an inspiration to them.  We are truly humbled by the amount of support and love we and Frankie has received, and now that 2014 is here…

Memory Candles

Last night myself, my husband and my best friend lit memory candles in Frankie’s room to mark Christmas Eve: It still hasn’t fully sunk in that Frankie is in heaven with all the other angels.  It just doesn’t seem fair, as I should still be pregnant now. We’re trying to enjoy and make the best…

RIP Frankie – 25th November 2013

So this was the day that my heart broke into a million billion trillion pieces, at precisely 2.14pm in the afternoon. Frankie’s heartbeat had stopped, and he was no longer alive inside me. If there was any point in my life where I wanted to die, this was it.  I so wished that I could…

Two Weeks On….

My son Frankie was born sleeping on November 29th 2013 at 4.43am weighing 4lbs 10oz.  Those statistics are at the forefront of my mind every second of every day. I have so much I want to write about, I want to document everything that happened since November 25th, I want to write about Frankie’s birth…

Baby Frankie On YouTube

Here is the footage from Baby Frankie’s scan at Babyvision in Shrewsbury from last week, one clip with audio and one clip without audio: With audio: Without audio: Hopefully these should work but if they don’t drop me an email via enquiries@babyandcleft.co.uk and I’ll see what I can sort out.

The Diagnosis – One Month On……

It is exactly one month today since baby Frankie was diagnosed with his cleft lip and possibly palate and the sonographer at the Worcestershire Royal Hospital during a scan I had at 23 weeks uttered the words, “I can see an abnormality”.  Those words changed my life forever. In just a few short weeks I’ve…

Turning Another Corner……

When baby Frankie was initially diagnosed with a cleft lip/palate on 25th September, one of the things that went through my mind at the time, which seems absolutely absurd and crazy now, was that I wouldn’t be able to take him to mother/baby groups when he’s born and show him off as any proud mother…

Things Happen For A Purpose….

Everything happens for a reason, although we may not understand it at the time, if you hang in there, all the pieces will eventually fall where they belong. So it is literally just 3 weeks and 1 day since Wednesday 25th September, when my husband and I received the initial diagnosis at Worcestershire Royal Hospital that…

Francesco Enrico – 23 Week Scan Photo

When I returned to the Worcestershire Royal Hospital yet again on September 25th, this was the fateful day that we received the devastating news that Frankie had a cleft lip and possibly palate, and that I was going to be referred for an urgent scan up at Birmingham Women’s Hospital to get the diagnosis confirmed…