“AND I DON’T EVEN KNOW WHERE MY BABY IS BURIED!” Oh For An NHS Future-Gazer!

Originally posted on CHAPLAIN'S BLOG:
None of this for my friend 49 years ago… Today I heard a tragic tale from someone I count as a friend. They had seen that I had been shortlisted for a Butterfly Award for my work with parents who have lost their babies (see my profile here: http://www.thebutterflyawards.com/index.php/voting/userprofile/revdavidsouthall…

Cleft Lip & Palate Diagnosis Delivery: Communication Matters (Cleft Lip & Palate Awareness Week)

When my Frankie was diagnosed with a severe cleft lip and palate, this is what happened: My unborn son Francesco “Frankie” Enrico Ventura was diagnosed with a unilateral cleft lip and palate at the Worcestershire Royal Hospital on Wednesday 25th September 2013 when I was 23 weeks pregnant.  The sonographer who conducted the scan blurted out…

Support For Empty Armed Mothers

I’ve been doing a lot of work on “Frankie’s Legacy” recently to bring it more in line with what I always wanted it to be – a blog and a place where I can talk honestly and openly about my feelings, a resource site for early pregnancy loss, stillbirth, neonatal death, cleft lip/palate, rare chromosome…

New Campaign: Communication Matters!

 I will be launching a campaign in the coming months called “Communications Matters” which will promote the importance of excellent communication between healthcare professionals and parents to be, especially when bad news has to be given.  This is an area that is woefully lacking within the NHS, and the following are some actual examples of…

The Green Eyed Monster – Part 2

Today I awoke to the news that the majority of us in the UK have all been waiting for, that the Duchess of Cambridge had gone into labour.  When Prince George was born I was just over 3 months pregnant with Frankie, and marvelled and how amazing she looked when she left the Lindo Wing…