Cleft Lip & Palate Diagnosis Delivery: Communication Matters (Cleft Lip & Palate Awareness Week)

When my Frankie was diagnosed with a severe cleft lip and palate, this is what happened: My unborn son Francesco “Frankie” Enrico Ventura was diagnosed with a unilateral cleft lip and palate at the Worcestershire Royal Hospital on Wednesday 25th September 2013 when I was 23 weeks pregnant.  The sonographer who conducted the scan blurted out…

A Star For Frankie

One of the Christmas presents that Russ got me was the chance to name a star after Frankie, which made me cry when I opened the envelope that contained the paperwork inside it.  This is the certificate and co-ordinates of the star, which is in Frankie’s star sign constellation of Sagittarius: I thought this was a…

Frankie’s 1st Birthday

A year ago you left us And the pain is still so strong Why did it have to happen? It was just so very wrong You were wanted so very much We couldn’t wait for you to be here We got your room all ready And celebrated as the time drew near And then our…

Time For Reflection….

Apart from updates about Frankie’s Legacy as a charity, and the events that I’ve been working on to raise funds to go towards improving the delivery suite facilities at the Worcestershire Royal Hospital and other hospitals in the area, I realised that have lost sight of the original purpose of this blog.  I didn’t mean…

Many thanks for all your support

We would like to thank everyone for all the help and support we have received in launching Frankie’s Legacy, on Thursday 10th April. We could not have done it without your support. Our Sponsors: Venue: Bindles Brasserie – Victoria Hamilton-Jones Photography: Mike Henley Photography F8 Photography T-Shirts: Urban Prints Video: James Mcdonald – All About…

Two Months Ago Today…..

Two months ago today Frankie was born sleeping at the Worcestershire Royal Hospital.  These statistics will remain in my mind forever: Francesco “Frankie” Enrico Ventura, born sleeping on 29th November 2013, 4.43am weighing 4lbs 10oz. Two months ago today I held my sleeping angel in his arms, marvelling at how perfect he looked even though…

Over £1000 Raised For The Cleft Lip & Palate Association Charity – We Have Exceeded Our Target!

My husband and I are thrilled to announce that through Frankie’s Legacy we have exceeded our target of £1000 raised for the Cleft Lip & Palate Association Charity, with the total raised being £1057.62.  We are so pleased with this, especially as we were fundraising for CLAPA over Christmas and New Year and cannot thank…